Sunday, March 11, 2007

What's New in MS Research?

When I was diagnosed in 1989, there was no effective treatment for MS. So much has changed; there are several approved treatments and the research continues to find more options. In the last several weeks, I have read about many new possibilities, including the following:
  • Danish and Belgian researchers have found a computer key that may help discover more about diseases including MS.
  • This month, a two year study begins exploring estriol as a treatment. Estriol has been identified as the hormone that suppresses MS symptoms during pregnancy.
  • Vaccinex is commercializing a novel antibody that represents a new targeted therapy for MS.
  • Enkorten, a drug developed in Bosnia, has successfully completed the first phase of clinical trials. It is the first patented drug from Bosnia for MS treatment.
  • Tysabri continues to be tested as a disease-modifying treatment in view of the potential risks.
  • Scientists have discovered the process used by the body to clean up damaged nerve tissue and they think this clean up process could have important implications in myelin regeneration.
  • A new drug, revimmune, has been found to improve function and stop progression. Based on a follow-up, most MSers have improved movement.
  • A study has found marijuana to be a wonder drug for MSers as well as other pain-causing diseases.
  • BioMS is expanding its treatment options, focusing on secondary progressive MS.
This has been an exciting time for MS research, and I'm sure there are more exciting programs around the world. Wow. Sounds like hope to me.

1 comment:

The Patient Connection said...

The Patient Connection would like to take this opportunity to invite you to participate in a new blog on Multiple Sclerosis. It would be great if you could do so as it will help us plan research into Multiple Sclerosis over the next few months.

http://www.thepatientconnections.com/blog.asp?uid=15l


What it is:

The purpose of this blog is to help The Patient Connection find out more about living with Multiple Sclerosis and how it is treated, its effect on home and the environment.

Also, you may be aware that in the United Kingdom NICE, the Government's drug watchdog, has recommended against the prescription of one of the most effective drugs so far developed to treat Multiple Sclerosis. NICE has advised that the efficacy of Tysabri is not proven or that the cost is simply too high.
"In clinical trials, Tysabri has shown a significant reduction in relapse rates and a reduction in the risk of disability progression.”
What does this mean? People with MS could face the prospect of an improved quality of life, would have the chance of staying in work and be independent and not rely on State benefits –
Simon Gillespie said: "The UK is now alone in rejecting this drug. More than 10,000 people with MS in Ireland, Germany, the USA and elsewhere are already benefiting. But NICE has decided people with aggressive MS in the UK are simply not worth it."
What are your thoughts? How are you currently treated? Are you fortunate enough to have been prescribed this drug? Do you have to go abroad for your prescription and treatment? How are you currently treated? Have you changed your lifestyle? Do you get the right support from the State, employers, friends, family?

If you wish to participate in market research now or in the future you can join our research community The Patients’ Voice here

http://www.thepatientconnections.com/patients-voice/index.html


If you have any more questions please feel free to get in touch with me on Belinda.shale@thepatientconnections.com

Thanks for your help

Belinda
The Patient Connection