Wednesday, September 16, 2009
Each condition also has a section for questions -- any question -- answered by others who may have experience with the question topic.
Browse the site, share your stories or ask a question. I'll see you there!
Thursday, September 10, 2009
Lisa Emrich of Brass and Ivory posted this yesterday and asked that we copy and post it. The link to the survey is included. It took me less than 10 minutes. There was no space specifically designated for comments, but I put them in the spaces provided for "other." Will they be read? I hope so.
Here is Lisa's post:
Share Your Thoughts on MS and Genetic Research!!
HereEarlier today, I was contacted by Virginia Hughes who is a freelance science writer with a special interest in genomics and disease, specifically autism and schizophrenia.
She is participating on an ethics panel at the 2009 Cold Spring Harbor Laboratory (CSHL) conference on Personal Genomes. Virginia says that "they've ask me to comment on what I think is the current and future appetite for genetic testing among people who belong to various disorder advocacy organizations, such an MS organizations."
She is looking for solid numbers to include in her presentation, so created a survey about our thoughts on Multiple Sclerosis, Genomics, and Genetic Research.
The survey is simple - only eight short questions. Virginia would appreciate receiving at least one hundred responses so that the results might show some meaningful trends. Perhaps we could spread the word and get even more than that.
Please complete the survey and be sure to mention the MS blogs and groups where you often read MS-related information.
Feel free to copy/paste this post in its entirety and post it on your blog and at your favorite MS forums, message boards, and social networks.