She talks about things we have all felt:
- fighting with bureaucracy, trying desperately to remain independent, or as independent as possible
- helplessness, hopelessness, fear, rage
- intimacy issues
- spasms
- going to the bathroom, showering
- getting dressed
- isolation, feeling trapped inside
- asking for help and the unfairness of NEEDING to ask for help
Read her poem, but read it aloud, quietly, slowly, thoughtfully. One commenter said he wished he could hear it in her own voice -- yes, but I thought I did. Another said it was powerful -- yes, as is the entire blog. Other MSers can relate with her daily life and with the feelings she has communicated so well. People without MS can understand.
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