Please Sign the Petition

NMSS is behind a petition drive to increase federal funding MS research. The MS Society is asking for 200,000 signatures.

If you have MS, or if you know someone who does, click here to read the information and include your name. It takes only a moment. Then email the URL to your friends and family who would like to support the effort to find a cause, improve treatment, and miraculously find a cure.

Thank you.

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Open Enrollment

From November 15 to December 31 is open enrollment for Plan D.

Earlier this year many of us signed up for Medicare Plan D to take advantage of prescription benefits. There were so many advertisements luring us, but they were confusing and difficult to compare.

Happy with your plan? Lucky you!

Ready to change plans? Armed with several months of experience, it should be easier to review the various plans. NMSS has tips on choosing a plan and applying for financial assistance.

technorati tags: ms, multiplesclerosis, pland, healthcare

Is this all?

You have MS. Are you still at risk for cancer? For a stroke? Isn't the MS enough?

Well, yes, it is enough, but there is no guarantee you won't also develop another chronic disease. Many blogs and stories I read include tales about a second, or even third medical problem in addition to MS. Life isn't fair.

No, life is not fair and contracting one condition does not reduce the chance of contracting another. I have secondary MS, which is not fair in itself. I also have severe osteoporosis. Not fair again. We all have to take care of ourselves, and that responsibility does not end when one disease is diagnosed.

You have MS. How do you find out if you are at risk, and what do you do to reduce that risk?

The Harvard Center for Cancer Prevention has developed a quick -- less than 5 minutes -- questionnaire to help determine your risk. It also gives tips for strengthening your health chances based on your results. Test for osteoporosis, cancer, diabetes, heart disease, and stroke. I did. It was fun, the results were correct and informative.

technorati tags: ms, multiplesclerosis, cancerrisk, healthcare

Thanks Shemar

Shemar Moore started as a fashion model, but soon became known to television audiences. Monday, Moore appeared on Ellen, where he talked about his family, especially his mother who has MS. He is currently one of the FBI profilers on Criminal Minds.

Shemar told about his ride in the MS Bike Tour.

He didn't ride alone. In fact, Shemar was joined by some of the cast and crew, including
Mandy Patinkin and Thomas Gibson.

Actors often describe their relationships while working on a television series as "like a family." How nice the Criminal Minds family joined Shemar in riding 100 miles for his mother.

technorati tags: shemarmoore, ellendegeneres, thomasgibson, mandypitinkin, msbiketour, criminalminds

What about Yoga?

MS challenges us in all facets of life, and exercising is no exception. But aerobics may not be the best program for the MSer. Yoga, however, is an excellent aid to symptom management, for the mildly disabled AND the non-ambulatory according to the American Yoga Association.

Martha Patt received the Champion of Courage grant to produce a DVD aimed at helping MSers incorporate yoga into their daily lives. Patt was diagnosed in 1984, practices yoga daily, and teaches yoga for the NMSS. She says it helps with her leg pains and anxiety. She was named a Betaseron Champion of Courage in 2004. The DVD was scheduled for production in the falloff 2005. Interested? Email Martha at yoga4ms@aol.com for more information.

Yoga is also recommended for caregivers.

Sue Lee grew up with yoga -- both grandfathers practiced and her mother taught before she began teaching. Her husband was diagnosed in the late 70's. She developed a form of yoga specifically for MSers. Find her videos here.

technorati tags: ms, multiplesclerosis, exercising, marthapatt, suelee, championofcourage

The Election Is Over -- What Now?

Some of the new representatives will be in their home districts until the 110th Congress is seated. Take advantage of this time to inform them about issues important to the MS community. Here are some issues that should interest them:

• Stem cell research passed both the House and Senate earlier this year. Maybe now the re-introduced measure can survive a veto.
• There is talk about stricter oversight of Plan D, specifically concerning costs.
• Research funding is always important, especially addressing NIH re-authorization passed by the House but not the Senate.
• A bill has been introduced that will allow the FDA to allow low-cost generics for drugs produced from living organisms.

For details about these issues, visit the NMSS.

technorati tags: ms, multiplesclerosis, research, congress, advocacy, stemcellresearch, genericdrugs, pland,

Still Working with MS?

Chronic illnesses, including MS, often cause people to quit the job market prematurely. Rehabilitation was often focused on re-entering the work force. However, the recent focus is more often aimed at job retention.

Here is a study about the trend of intervention to train people to request accommodations or improve psychosocial skills, determining which methods produce the most positive results.

There is evidence that training to request accommodations and to build self-confidence in dealing with work-related problems is effective. Evidence was weak because of the short follow-up, but the conclusion was that more rigorous study is required. The need is for participants, both as patients and as physicians.

When my doctor recommended that I retire, she also cautioned me. I struggled with the decision and I know it was right for me. It is difficult. Be careful.

technorati tags: ms, multiplesclerosis, earlyretirement, workingwithms, downthemspath

To the Slopes

November. Time for sweaters, fireplaces, planning for the holidays and your ski trip. Yes, ski trip.

The Adaptive Sports Association (ASA), a non-profit organization that works to enhance the lives of the disabled, offers the New Dimension Scholarship for snow skiing. The ASA has been serving hysically and cognitively disabled people for over 20 years helping them enjoy sports with adaptive equipment.

The ski scholarship includes roundtrip transportation to Durango, Colorado, 5 nights lodging and meals, accessible ground transportation, and 4 days instruction. Thanks to an MSF grant, ASA will host more MSers.

Skiing and snowboarding are popular activities with the disabled. Wonder how it works? Visit this site for ways to adapt.

Apply by Dec. 15. Good luck!

technorati tags: ms, multiplesclerosis, adaptivesnowskiing, adaptiveskiingscholarship, freetrip

Everyday Warriors

President Bush proclaimed November as National Family Caregiver's Month, honoring over 50 million Americans providing care for loved ones. Caregivers need care, too, and the Internet has information and support for family members providing special care.

Family Caregiver Alliance a public voice for families caring for family members with chronic diseases, offers programs to support and sustain families nationwide.

Ability Hub has a section specifically for emotional and spiritual support of caregivers, or as they say, everyday warriors.

CareGivers-USA is a nationwide directory of caregiver support services, all free and confidential. National Family Caregiver's Association suggests ten ways to show appreciation for services valued over $3 billion.

My caregiver is Garry, and I don't know what I would do without him. I hope I don't have to find out.

technorati tags: ms, multiplesclerosis, downthemspath, caregiver

How do you feel?

Here it is -- almost Thanksgiving, with Christmas not far behind. The Christmas Season is a time of celebration and happiness, but it is also a time for intense depression and disappointment. MS tends to cause your feelings to dip toward depression, but here's an idea. Write about it.

MSF and Hunter House are hosting a "Focus On Your Feelings" Holiday Giveaway. In 200 words or less, tell about the emotional impact of MS on your life. Choose your format or style, prose or poetry, and talk about depression, denial, acceptance; tell your story. Ten winners will be published on both the MSF and Hunter House web sites, and they will receive an autographed copy of MS and Your Feelings by Allison Shadday. Ms. Shadday, an MSer herself, counsels MSers as well as writes.

Send entries by Dec. 1st to editor@msfocus.org and include "Focus on your Feelings" Holiday Giveaway in the subject line. Please include your name, the date you were diagnosed, your age, city, state, telephone number or email address. Winners will be contacted by Dec. 15.

Good luck!

technorati tags: Ms, multiplesclerosis, holidaygiveaway, writingcontest, storycontest, msf, hunterhouse, focusonyourfeelings, downthemspath