Thursday, September 10, 2009

MS Survey

Do you want a voice in MS research? Here's a chance.

Lisa Emrich of Brass and Ivory posted this yesterday and asked that we copy and post it. The link to the survey is included. It took me less than 10 minutes. There was no space specifically designated for comments, but I put them in the spaces provided for "other." Will they be read? I hope so.

Here is Lisa's post:

Share Your Thoughts on MS and Genetic Research!!

HereEarlier today, I was contacted by Virginia Hughes who is a freelance science writer with a special interest in genomics and disease, specifically autism and schizophrenia.

She is participating on an ethics panel at the 2009 Cold Spring Harbor Laboratory (CSHL) conference on Personal Genomes. Virginia says that "they've ask me to comment on what I think is the current and future appetite for genetic testing among people who belong to various disorder advocacy organizations, such an MS organizations."

She is looking for solid numbers to include in her presentation, so created a survey about our thoughts on Multiple Sclerosis, Genomics, and Genetic Research.

The survey is simple - only eight short questions. Virginia would appreciate receiving at least one hundred responses so that the results might show some meaningful trends. Perhaps we could spread the word and get even more than that.

Please complete the survey and be sure to mention the MS blogs and groups where you often read MS-related information.

Thank you,

Lisa Emrich

Feel free to copy/paste this post in its entirety and post it on your blog and at your favorite MS forums, message boards, and social networks.


Sherri said...

Thanks for the information on the survey, Vicki! I completed it and I'll put in on my Facebook page for my other MS friends to see.

Diane J Standiford said...

This is a fast, easy survey and can really reach some important topics.

Arlington yoga said...

its really very fantastic and informative article on survey. thanks for sharing this.

Vicki said...

Thanks for taking the survey, and for passing it on. I am always for surveys as a way to gather and share information.

I think it's a good thing to gather as well as to share. How else will we ever find out? And I want to find out -- I think.

Anonymous said...

great post, I am interesting in it!