Wednesday, December 10, 2008

MS is a Family Affair

I was lucky when I was diagnosed with MS. My boys were teenagers in high school, old enough to understand, and old enough to help with things. I met an MSer with very young children who was lucky enough to have family in town as well as a helping husband, but I still wondered how she did it.

When children or teenagers have a parent with MS or have MS themselves, they have the same questions as adults, and parents may not know how to answer. They often turn to the Internet for answers. Here is a young mother of two young children who was diagnosed ten years ago. She writes about Multiple Sclerosis -- Real life stories & Issues. It's worth a visit. Amanda is 26 and has 4 children! Her blog My Complications rants about daily life. She links to a Progressive MS bulletin board she helps manage on her sidebar along with a link to her recommendation of an online support group. And let’s not forget that men get MS, too. WhiteLightning is the blog of a young father, who writes in a fun story-telling style.My admiration goes out to you.

I regularly read Living Life as a Snowflake, a blog written by an MSer mom whose son compared MS with a snowflake: "...all different, no two are the same and...all special in (her) own way." What a lovely description. How lucky she is to have her son understand that well. She must have done a good job!

Raising children is not ever easy, but with a chronic disease it seems impossible. MS affects the MSer, but it doesn't stop there.

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Diane J Standiford said...

I've visited most of those blogs and tey are very good, have dealt well with MS and their children's lives. Richard Cohen (Merideth Vierra's husband ) has written a wonderful book too that tells a beautiful sory about raising his children while he lives with MS. (Grandpa has MS too) "Blindsided"

Merelyme said...

I have that blindsided book from the library...I simply must read it finally.

I wrote a post on Health Central recently about telling my kids...come and check it out if you have time.

Vicki said...

Diane, I have not read that book, but I'm sure it's good. I'm afraid I know more about Meredith than Richard, except the fact that he has MS.

Merelyme, That post is a good one. In fact, it is a link at the end of my post.

Cilt said...

I wrote a post on Health Central recently about telling my kids...come and check it out if you have time.