If you haven't signed up to walk in Dallas, it's time!
Today is team captain early registration. The walk is Saturday, March 27.
Support MS Awareness raise funds this week.
Order your "I Walk Because ..." sign. These personalized signs will be posted along the routes March 27. Signs are $25, with $20 going back to your fundraising account.
Monday, March 22, 2010
Saturday, March 13, 2010
Postcard Campaign for MS
During this month and week for MS, Our Heart Greeting has an idea to help spread awareness.
Give it a try!
We're hosting our THIRD annual Postcard Campaign for MS!
Give it a try!
Saturday, February 06, 2010
Exercise and MS
Besides improving mobility and strength, exercise therapy improves daily living, quality of life, and even the mood of MSers who participate.
What about fatigue? There is a theory that aerobic exercise might fight fatigue even though exercise usually heats up the body, and for MSers heat often results in fatigue. Hmm. Sounds like a vicious circle. Maybe not.
The University of Buffalo is researching that very question. Their study will determine "the effects of a 12-week aerobic exercise program on fitness, core and skin temperature, and heat flux in MS patients."
And here's something for everyone to consider. What you eat after aerobic exercise makes a difference in the benefits you get.
Be careful, stay cool, eat right, and stay fit!
What about fatigue? There is a theory that aerobic exercise might fight fatigue even though exercise usually heats up the body, and for MSers heat often results in fatigue. Hmm. Sounds like a vicious circle. Maybe not.
The University of Buffalo is researching that very question. Their study will determine "the effects of a 12-week aerobic exercise program on fitness, core and skin temperature, and heat flux in MS patients."
And here's something for everyone to consider. What you eat after aerobic exercise makes a difference in the benefits you get.
Be careful, stay cool, eat right, and stay fit!
Friday, January 22, 2010
Ampyra Approved!
Today Ampyra received FDA approval.
This therapy by Acorda Therapeutics increases walking speed in the four major MS types - RRMS, SPMS, PPMS, and PRMS.
Ampyra is in tablet form, previously known as fampridine. It is being developed in the US by Acorda Therapeutics, the company that works with zanaflex, and outside the US by Biogen Idec.
Ampyra is expected to be commercially available by March of this year. Read the press release.
This therapy by Acorda Therapeutics increases walking speed in the four major MS types - RRMS, SPMS, PPMS, and PRMS.
Ampyra is in tablet form, previously known as fampridine. It is being developed in the US by Acorda Therapeutics, the company that works with zanaflex, and outside the US by Biogen Idec.
Ampyra is expected to be commercially available by March of this year. Read the press release.
Wednesday, January 06, 2010
Two Ideas
Michael B. Gerber has some clever ideas and observations that help us think outside the box. Here are two posts that do just that:
It can be done
Michael tells us a marching band from a blind school reminded him for something to be done, the idea must come to someone who then shares it. He asks us each to ask ourselves "What can I do?" When you have an answer, share it. It may be the beginning of something important.
The Story of an MSer taking a Skydive
I have been thinking about this since I first read it, falling, not soaring. Almost everyone I know really like it whether they can describe it or not. This is not in my bucket, but I am glad he did it and shared the experience with us.
I was struck by the fact that they were not just willing to accommodate him — they were ready and experienced to accommodate people with disabilities! What does this mean? It is not unusual for a person with a disability to take advantage of their service. How great is that!? If it can be done for skydiving, it can be done for many, many other activities.
Thanks for sharing, Michael, and Congratulations on your jump.
In a comment by Andriana she wondered “if our minds disable us from going/doing beyond the norm.” I believe, and I know I am not alone, that the brain IS the biggest personal disabler in people with and without disabilities. Are you feeling your disability excludes you from an exciting activity? Check it out.
It can be done
Michael tells us a marching band from a blind school reminded him for something to be done, the idea must come to someone who then shares it. He asks us each to ask ourselves "What can I do?" When you have an answer, share it. It may be the beginning of something important.
The Story of an MSer taking a Skydive
I have been thinking about this since I first read it, falling, not soaring. Almost everyone I know really like it whether they can describe it or not. This is not in my bucket, but I am glad he did it and shared the experience with us.
I was struck by the fact that they were not just willing to accommodate him — they were ready and experienced to accommodate people with disabilities! What does this mean? It is not unusual for a person with a disability to take advantage of their service. How great is that!? If it can be done for skydiving, it can be done for many, many other activities.
Thanks for sharing, Michael, and Congratulations on your jump.
In a comment by Andriana she wondered “if our minds disable us from going/doing beyond the norm.” I believe, and I know I am not alone, that the brain IS the biggest personal disabler in people with and without disabilities. Are you feeling your disability excludes you from an exciting activity? Check it out.
Monday, December 28, 2009
Oral Medication
Okay, pills for MS are not yet available, but they are coming soon. Soon is a word we hear about medical trials quite often. We do not know exactly when soon means, but we are closer than ever before.
There are five, yes, five different possibilities of oral medications in trials at this time. The first two approved will probably be cladrbrine and fingolimad. Familiar names — coming soon to a pharmacist near you.
Many of us with MS have been waiting for these two oral medications to reach the market. When it happens, I hope there are plenty of pills and that they make a difference in our lives!
There are five, yes, five different possibilities of oral medications in trials at this time. The first two approved will probably be cladrbrine and fingolimad. Familiar names — coming soon to a pharmacist near you.
Many of us with MS have been waiting for these two oral medications to reach the market. When it happens, I hope there are plenty of pills and that they make a difference in our lives!
Thursday, December 24, 2009
My Card for You
For the Christmas Tree, Garry used IFL Labs software for the fractal and Jasc animation software for the animation.
Thursday, December 10, 2009
Pioneers in Research
The University of Texas Southwestern (UTSW) is one of 23 schools nationwide to receive a grant from Howard Hughes Medical Institute (HHMI), called Med to Grad, helping Ph.D students learn to move laboratory research to clinical trials.
Dr. Helen Yin started the program at UTSW, calling the participating students pioneers.
"This major grant from HHMI is a creative initiative that highlights the fundamental linkage among our core missions of education, research and patient care," said Dr. Daniel K. Podolsky, president of UT Southwestern. "It will significantly further out highest priorities as an academic medical center committed to biomedical research and its translation into innovative patient care."
Dr. Helen Yin started the program at UTSW, calling the participating students pioneers.
"This major grant from HHMI is a creative initiative that highlights the fundamental linkage among our core missions of education, research and patient care," said Dr. Daniel K. Podolsky, president of UT Southwestern. "It will significantly further out highest priorities as an academic medical center committed to biomedical research and its translation into innovative patient care."
Monday, November 16, 2009
Research Studies
Want to volunteer for a medical research study?
UT Soutwestern sent a press release about ResearchMatch where volunteers can be matched — online — to a scientific research project, or clinical trial, for which they might qualify. The National Institute of Health gave UT Southwestern a grant to help quickly move laboratory discoveries into actual therapies.
This new allows the medical community "to cast a wider net into a deeper pool of potential subjects.” Both healthy people and those with illnesses and conditions can take advantage of this opportunity!
UT Soutwestern sent a press release about ResearchMatch where volunteers can be matched — online — to a scientific research project, or clinical trial, for which they might qualify. The National Institute of Health gave UT Southwestern a grant to help quickly move laboratory discoveries into actual therapies.
This new allows the medical community "to cast a wider net into a deeper pool of potential subjects.” Both healthy people and those with illnesses and conditions can take advantage of this opportunity!
Saturday, November 14, 2009
MS and Evils
One of my favorite online friends Michael B. Gerber doesn't write in his blog about MS, he writes about life. His happens to be a life with MS, so MS sneaks in there now and again. You may notice his blog "Perspective Is Everything" in my "Favorite MSer Sites" list.
Last week Michael sent me a story about medication and side effects. He asked if I had something to add, but it was good, as his writing is. I did, however, manage to throw in a word or two and make a change here or there. Read our post here: The Lesser of Two Evils
His is a blog certainly worth reading. While you're there, look around. Enjoy.
Last week Michael sent me a story about medication and side effects. He asked if I had something to add, but it was good, as his writing is. I did, however, manage to throw in a word or two and make a change here or there. Read our post here: The Lesser of Two Evils
His is a blog certainly worth reading. While you're there, look around. Enjoy.
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