I'm Sleepy

No day is so bad it can't be fixed with a nap. ~ Carrie Snow

There was a time, long ago, when I couldn't sleep. I went for days, sometimes weeks, without a restful night. I had a sleep disorder. My doctor gave me various medications, none of which worked. I learned to relax by meditating, but I had trouble actually sleeping.

Not any more. And I may have found out why my day doesn't start until noon.

As part of the profile on Patients Like Me, we select from a long list of symptoms. One of the choices is 'excessive daytime sleepiness.' I didn't even know that was a symptom, but 607 MSers also listed this as one of theirs. Wow. 607 out of 1492 MSers are sleepy during the day.

All of those years trying to sleep and all I needed was MS. I don't have any problem sleeping any more.

technorati tags: sleepdisorder, ms, multiplesclerosis, health, healthcare, troublesleeping, excessivedaytimesleepiness, downthemspath

MSer Stories

MSers are writing their stories and they are willing to share.

Janice Foster retired at 37 due to MS issues. Read her story in Picking Up The Pieces: Rising Above a Loss Again & Again, available at Author House.

Don McNeal, former Miami Dolphins defensive back wrote about maintaining a positive attitude while overcoming MS obstacles. His book Home Team Advantage found at Power Publishing.

Chris M. Tatevosian tells how his "poor me" response to his MS diagnosis cost him a marriage; about bee venom therapy, his faith, and his new wife-to-be. Life Interrupted: It's Not all about Me is available at Book Surge.

Pity-Us-Not MS Support Group Leader Barbara Marchant wrote Dance On about the lives of three very different women with the same MS diagnosis. Dance On can be found on the major online booksellers, with royalties benefitting MSF.

You have a story. Tell it in a book, and use one of the online booksellers to publish it yourself. Other MSers might benefit from reading your story. What fun!

technorati tags: ms, multiplesclerosis, self-publishbook, writingyourstory, downthemspath

Disaboom Launch

This is my blog and I like it. I find it fun to research and write, and I plan to continue here.

However, I have found another site and started a blog there, too, called Vicki's MS Path. It's located on Disaboom, a website that hosts a community of bloggers with an interest in disability and it offers more than that, too. It was started by Dr. House -- not the TV one -- with the idea that one blogger may be strong, but many bloggers in the disability community can be powerful and inspiring. There are many disabling conditions, each with its own issues and needs, but many issues are common among them all.

The blogs here cover both individual and common issues. I really like Disaboom. I did not know about this site until a few weeks ago, but since then I have read many of the blogs. So far they're very good and on a wide range of topics. They also invite reviews of restaurants and hotels by people who know what accessibility really is. I think this is a great idea.

My first post on Vicki's MS Path talks about children's attitudes toward people with disabilities. The second one is about the language of disability.

There are many MSers on Disaboom as well as bloggers representing other disabling conditions, and other topics such as parenting and caregiving. There are headlines, discussion groups, and classifieds. Disaboom launches today. Go visit and...

technorati tags: downthemspath, disaboom, disability, vickismspath

How You Say It

The terminology used when discussing disabled people can reinforce negative stereotypes or help enhance the group status in the eyes of our society. Read my Disaboom blog for this week.

And while you are there, take a look around. Disaboom, the site destined to become the preferred destination site for the disability community, is preparing to launch. The launch is scheduled for October 1, so take pre-launch tour. Enjoy.

technorati tags: downthemspath, disabilitysite, languageofdisability,

Confucius Knew Balance Problems

Today is Confucius Day. He included sayings relevant to people with disabilities.

Our greatest glory is not in never falling, but in getting up every time we do.

technorati tags: confuciusday, downthemspath, balance

Down the MS Path

There are several paths one can take, but not every path is open to you.
Claire Bloom

How do I know if a particular path is open to me? I am on my current path, which I did not choose, and I don't see another path to travel instead. Hmmm

Do not follow where the path may lead -- go instead where there is no path and leave a trail.
Ralph Waldo Emerson

Now, I like that idea. If my path becomes a bit rocky and rough, I can blaze my own trail. It seems I might have some control here after all. And as I roll down my path, I am reminded not to dwell on the negative.

What lies behind us and what lies before us are tiny matters compared to what lies within us.
Ralph Waldo Emerson

technorati tags: chosenpath, positiveattitude, downthemspath

Where's an MSer to Live?

St. John prohibits unrelated people from living together in a single-family home.

Now that just doesn't sound fair. I thought that when I wrote about a similar situation in Black Jack, Missouri, over a year ago. This is similar, but it is different. The prohibited resident is an MSer.

The Department of Justice is suing the city for denying a zoning variance to a person with multiple sclerosis because people with disabilities deserve access to fair housing.

I think everyone should have access to fair housing, including MSers. I have to be fair. I have to believe an MSer can live with a caregiver, a friend, a sweetheart -- because I do.

technorati tags: doj, departmentofjustice, fairhousing, housingrestrictions, zoningvariance, downthemspath

Disaboom

Here's another new site with great potential. Scheduled to premiere October 1, Disaboom is hoping to become the preferred destination for the disability community.

There is a community of disability blogs, forums, notice of jobs, events, products, restaurant reviews including accessibility issues from people who should know, and more. There is a health section with information about specific conditions including spinal cord injuries, cerebral palsy, low back pain, amputation, and more. Oh, and did I mention multiple sclerosis? And there is more. And even more.

This week I wrote about children's perceptions of wheelers. What do kids actually see when they see someone in a wheelchair?

Disaboom. Dis - disability. Boom - explosive impact. A disability does not make a person insignificant. A major thrust is to create power for our community, inspiring others through the knowledge gained by experience. Thanks to Tim Pointdexter for that explanation, though he leaves it open for our own interpretation.

This site is new, still in its forming stage, and open for suggestions. Visit Disaboom. Have a suggestion? Let them know.

technorati tags: disaboom, disability, disabilityblogs, restaurantreviews, productreviews, downthemspath

Revolution Health has an MS newsletter which provides links to relevant news items and a link to the many MS Foundation chat forums.

They are highlighting a new ribbon color (orange), Proceeds from products offered, including the magnetic MS Awareness ribbon, t-shirts, jewelry, and more, go to the MS Foundation. They even have a cuddly orange teddy bear wearing an MS pendant.

The newsletter also identifies free teleconferences, giving date, time, topic and telephone number for registration. This is one way to stay current on news as well as community chats on a variety of subjects.

technorati tags: revolutionhealth, msnewsletter, msribbon, msribbonproducts, msteleconferences, downthemspath

National MS Conference

Once one of the most recognizable buildings anywhere thanks to the TV show Dallas, the Hyatt Regency is the location for the 2007 National MS Conference Oct. 24 - 26.

The conference is Moving Forward Together, focusing on building volunteer leadership. Activiities include training, inspiration, recognition, networking and entertainment.

And of course there will be a Texas-style 'denim and diamonds' party.

technorati tags: ms, multiplesclerosis, msvolunteers, nationalmsconference, downthemspath